I had many dreams of writing a very different journal entry today but it seems that I am at a complete loss for words. I am in shock and utter disbelief. It has left me, for once, nearly speechless. It seems that last night I received an email from a relative of one of the little boys in Graham's class at school. He is one of Graham's friends and his family is one that we have known for years. It seems that this little boy was just diagnosed with neuroblastoma.
This has hit way to close to home. It feels as though lightening has stricken twice.
I don't know what to say.
I can remember it all too vividly - that first night after diagnosis. The shock. The horror. The fear. I want to let them know that it will get better. I want to let them know that there is hope.
I know it sounds stupid but I just can't believe that another family and child have stepped into this world.
I hate this damn disease with every fiber of my being.
There is a new little boy that needs our prayers today.
Purpose is racing through my veins.
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2008
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June
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- An unexpected joy
- Making sense of the senseless
- Angel Alexa
- Horrible Kiddo Day and 4HPR/ABT-751 cont.
- Fenretinide and ABT-751?
- 5 years of purpose
- What is tomorrow anyway?
- Mr. Mom?
- Control
- A New Swimmer Emerges
- Father's Day, the holiday of the year!
- Swimming in Twerpdom
- The Twerp Whisperer
- Boot Camp Summer
- New views on old rules.
- A busy, busy weekend
- A brand new year
- Our little buddy Hayden
- Oh No!
- Poop and Purpose
- I have finally began to recover from the last two ...
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June
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4 comments:
I will be praying for this new little one. Can you email me his name and if he has a site? Hugs and prayers. Carolyn Wing grandma to Laura Stage IV neuroblastoma carepages.com page name LauraVDB
carolyn_wing@yahoo.com
Thanks for being there for him and his family. Its great to know that you be able to give this family the much needed support and information on this type of cancer. Thanks!
love, prays, and best wishes from an ACC teacher
As soon as i knew about Sydney I wanted to know more, but the more I knew, the harder it was for me to understand how something like this could happen to anyone. I started reading from your first blog foward and I've read of all the struggles you've been through and it didn't hit me so hard as when I found out Hayden was in the hospital. It hurts my heart to know anyone could go through anything like that, and even worse that more than one person would go through it. My prayers are with you and your family, and thank you for being there for Hayden's family. You and your wife have a strength that I could only wish of having.
p.s. I would like to describe ainsley as more of someone with a lot of charater, who likes to discover things on her own....and super adorable....the twinkle in her eye when i see her in the morning, makes everyday the greatest day....poop on the walls or not....
HI Mark, I'm very sorry for this family. Please let them know of www.loneliesthour.org as a good jumping off place to begin. Caringbridge link, NCI etc are all there. Let us know what we can do to be of help or support. How old is the child? Do they have staging yet? It sure does sound like lightning hitting twice. I'm glad that they will have access to a "friend" who can at least show them where to begin. I'm praying. Love Ellen
http://www.caringbridge.org/ma/seanhanson
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