This diary is a funny thing. I always write about exactly what I am feeling and thinking. Sometimes those thoughts are about the antics of the rugrats. On other occasions, quite obviously, I have this deep seeded need to share what I learn about neuroblastoma and its treatment. In either case, the feedback I get from both parties, people who love hearing twerp stories and people looking for answers and insights into neuroblastoma, is extremely fulfilling. It seems as though, on any given day, I will receive anywhere from 5 to 20 messages about my diary entry through email or facebook. Obviously, on days where I ask a question or I talk about a controversial topic there is far more email, but, for the typical average day I can expect a pretty steady flow of email.
The email that I receive is generally very supportive. I very rarely get anything negative and those are limited to those that don't seem to appreciate my lack of institutional bias. The funny thing, however, is the polar division that seems to exist in the people that write to me. I don't know whether it is the case that for all that read this blog but I can tell you from the email I receive that the division is clear. People either like kiddo stories or they like neuroblastoma information. It seems everyday that I tell a funny story about the twerplets I will receive email telling me how much they appreciated the story and how I should write more kiddo stories. When I write about neuroblastoma topics I generally receive email from other parents (and some health care professionals) encouraging me to write more of those types of topics and thanking me for bringing those issues to light.
The good news, for me at least, is that a get great feedback from a very loyal group of readers everyday. It is because of that feedback that I feel motivated everyday to sit down in front of my computer and write. Whether it is through laughter or through the dissemination of some important information about neuroblastoma, I get the privilege of feeling like a make a difference everyday.
So, for that, I thank everyone who takes the time to share their thoughts with me. It makes my day.
Unfortunately, for those of you that enjoy my Sydney, Graham, and Ainsley stories, I will probably continue to poison your laughter and enjoyment with technical details about the treatment of a rare cancer called neuroblastoma. For those of you that enjoy my postings on all that is neuroblastoma you are going to unfortunately be burdened with interspersed silly nonsensical stories about my beloved gaggle of twerps.
I know, it just isn't fair. Here I get all of the reward and half of the time you are faced with either technical mumbo jumbo or ridiculous personal stories.
Thank you for putting up with me.
It gives my purpose strength.
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