It was a great day for metaiodobenzylguanidine!
Yesterday, Sydney had the privilege of being part of a check presentation for Hyundai's Hope On Wheels. It turns out that Hyundai presented a check for $40,000 to support the development of a new MIBG therapy center at Cook Children's. It was a great step in the right direction for an MIBG facility which is likely to cost well over $1 million. It is a huge step for Texas and the South. Right now, the nearest MIBG centers are in San Fransisco and Michigan. That means anyone needing MIBG therapy (the most effective treatment by response rate for relapse therapy) has to travel across the country right now and vie for one of the coveted spots. You see, these facilities only accommodate about 1 patient per month. The facility at Cooks will bring treatment much closer and provide more open spots for patients to receive an important potentially life-saving therapy. Here is a picture of Sydney adding her hand print to Hyundai's Hope on Wheels. The car will be featured in several ads about childhood cancer this fall.What a cute little girl! I think I might keep her.
However, that was not the only important news to come out of yesterday's little escapade. We also found out some incredibly important information that may go a tremendously long way in helping Sydney have a happy and more confident life.
This is big!
However, you will have to wait until tomorrow to hear the news.
I know, I am such a jerk! But, trust me, it is worth the wait.
It is purpose I never expected.
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Hi Mark - the daughter of a Mom on the Hodgkins Lymphoma website that I post on is the Youth Ambassador for this program - her name is Bri and she travels the country...wondering if she was there yesterday. Bri is a Hodgkins Lymphoma survivor.
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